Collaborating to improve outcomes and health-related quality of life for adolescents and young adults (AYA) with cancer, and those who are survivors of cancer as children, adolescents or young adults.
To ensure that AYA Canadians, both during and after treatment for cancer, have prompt, equitable access to the best care, based on education and research, to optimize their health outcomes and quality of life.
To eliminate the current disparities of care for AYA Canadians during and after treatment for cancer, through education and advances in treatment and research, respecting the unique needs of this population.
The second international Adolescent and Young Adult Cancer Stakeholders Workshop convened in Toronto on March 29 – 30, 2012. The workshop brought together over 100 stakeholders to map out a framework for implementing the recommendations of the Task Force for improved care of AYA with cancer. Stakeholders included representatives from hospitals, cancer agencies, Ministries of Health, advocacy organizations, non-governmental organizations, as well as, researchers, health care providers, survivors and AYA supporters.
The conference identified several important principles to guide the implementation of the recommendations at the local, regional and national levels, and to encourage an aligned approach across Canada. (The list of recommendations can be found under the “Our Priorities” section of this website).
After the conference, the Task Force released its pan-Canadian AYA Action Framework.
The Task Force’s pan-Canadian AYA Action Framework is a solid point of departure for future progress to improve AYA cancer control.
In promoting the framework for implementation of AYA Task Force recommendations for the care of AYA with cancer, and survivors of cancer in childhood, adolescence or young adulthood, throughout Canada, the Task Force will pursue objectives in the areas of:
b. Clinical and supportive care
c. Education and research
d. Prevention and screening
Activities will include developing mechanisms of sustainability for efforts to create change, and for evaluation; promoting awareness and building advocacy; and defining a robust research agenda.
Regional Action Partnerships (RAPs)
One of the outcomes of the March 2012 workshop was the establishment of Regional Action Partnerships (RAPs) representing every part of Canada. These RAPs are putting into action the framework for implementation of the recommendations for improved outcomes for AYA with cancer. Their collaborative approach has proven to be successful in bringing together specific expertise on a regional level and fostering the application of AYA-specific knowledge and tools that are developed by TF working groups. It is intended that the AYA Task Force will provide support and direction to the RAPs as they build their own infrastructures and plans for sustainability.
It is intended that the AYA Task Force will provide support and direction to the RAPs as they build their own infrastructures and plans for sustainability.